Preliminary programme 2nd European Polio Conference, Amsterdam, the Netherlands
Translation will be provided in Dutch, German and French, marked in Green
Wednesday June 25, 2014 Programme book
09.00 – 10.30 Plenary Opening Conference
09.00 – 09.15 Welcome – Frans Nollet (NL)
09.15 – 09.30 Dutch Patients’ Organisation for Muscle Diseases – Dick Van Dijk (NL)
09.30 – 09.50 Polio Eradication Initiative – Jan Lukas Ket (NL)
09.50 – 10.10 Polio Eradication Progress – Hamid Jafari (CH)
10.10 – 10.30 Paralysed with Fear – Gareth Williams (UK)
10.30 – 11.00 Coffee break
11.00 – 12.00 Plenary session – Congress Themes
11.00 – 11.15 Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment? -Frans Nollet (NL)
11.15 – 11.30 Treatment of Young Polio Survivors In an Outside Europe – Kristian Borg (SE)
11.30 – 11.45 Living with Polio in Europe from a Different Cultural Background – Ramneek Dev (DK)
11.45 – 12.00 Life with Polio in Ethiopa: My Take - Dagnachew Wakene (ET)
12.00 – 13.30 Lunch – With Performance / Poster Viewing
13.30 – 15.00 Symposium SS1 – Polio Survivors
Theme: Ventilatory Support, Speech and Swallowing Problems
13.30 – 14.00 Living with a respirator - Rene Vercoutre (NL)
14.00 – 14.30 Ventilatory Support in Patients with Post-Polio Syndrome – Michael Gaytant (NL)
14.30 – 15.00 Dysphagia and Dysphonia – Paivi Annikki Tupala (NO)
13.30 – 15.00 Symposium SC1 – Clinical Practice
Theme: Treatment of Young Polio Survivors In and Outside Europe
13.30 – 14.00 Treatment of Young Immigrants in Europe – Kristian Borg (SE)
14.00 – 14.30 Treatment of Young Polio Survivors in Turkey – Arzu On (TR)
14.30 – 15.00 Corrective Surgery from A Patient Centered Perspective for Polio Residuals in India – Mathew Varghese (IN)
13.30 – 15.00 Symposium SR1 – Research
Theme: Eradication of Polio and Virus Persistence
13.30 – 14.00 Polio Surveillance: Basis for Successful Eradication – Harrie Van Der Avoort (NL)
14.00 – 14.30 Development of Inactivated Polio Vaccine Based on Attenuated Sabin Poliovirus Strains. Manufacturing,
Clinical Trials and Technology Transfer – Wilfried Bakker (NL)
14.30 – 15.00 Persistence of Poliovirus Genome in Polio Survivors Diagnosed with Post-Polio Syndrome – Antonio Toniolo (IT)
15.00 – 15.30 Coffee break
15.30 – 16.30 Workshop WS1 – Polio Survivors
Management of Bladder and Bowel Symptoms
Lise Kay (DK) – Anne Marie Eriksen (DK)
15.30 – 16.30 Workshop WS2 – Polio Survivors
Exoskeletons for Enchancement of Patients with Neuromuscular Deficiencies
Frans Van Der Helm (NL) – Just Herder (NL) – Heike Vallery (NL)
15.30 – 16.30 Workshop WS3 – Polio Survivors
The Caregiver and Issues in Society
Jan Lexell (SE) – Anja Horemans (NL) – Mary Mcfarlane (IE)
15.30 – 16.30 Guided Poster Tours PT1 – Professionals
16.30 – 17.30 Free Papers Session FP1 – Professionals
Clinical Studies & Research Methodology
16.30 – 16.45 Blood Lipids Low in Patients with Post-Polio Syndrome – Eva Melin (SE)
16.45 – 17.00 Quantitative Muscle Ultrasound and Quadriceps Strength in Patients with Post-Polio Syndrome – Alice Bickerstaffe (NL)
17.00 – 17.15 The Neurological Fatigue Index for Post-Polio Syndrome (NFI-PP): A Patient Derived, Rasch-Standard Scale – Carolyn Young (UK)
17.15 – 17.30 Development and Validation of Neurological Coping Index - Post-Polio Syndrome (NCI-PPS) – Kristijonas Milnis (UK)
16.30 – 17.30 Workshop WC1 – Clinical Practice
International Exchange of Experiences between Polio Clinics
The polio-clinic, Sahlgrenska University Hospital, Gothenburg, Sweden – Katharina Stibrant Sunnerhagen (SE)
An Interdisciplinary Modular Programme for Post-Polio Patients - Axel Ruetz (DE)
Interdisciplinary approach of polio and Post-Polio Syndrome in a Rehabilitation Center in Catalonia (Spain) - Enric Portell (ES)
16.30 – 17.30 Workshop WR1 – Research
Gait studies in Poliomyelitis
Isabelle Laffont (FR) – Hilde Ploeger (NL) – Christina Brogardh (SE)
17.30 – 19.00 Welcome Reception
Thursday June 26, 2014
08.00 – 09.00 Workshops WP1 – Professionals
Clinimetrics – What Should We Measure for What Purpose?
Anita Beelen (NL) – Jozef Opara (PL) – Christina Brogardh (SE)
08.00 – 09.00 Workshops WP2 – Professionals
Exercise – From Theory to Practice
Merete Bertelsen (DK) – Eric Voorn (NL) – Deidre Murray (IE)
08.00 – 09.00 Workshops WP3 – Professionals
Orthotics – Guideline-Based Prescription Practice
Merel Brehm (NL) – Parwin Yari (NL) – Tom Gort (NL)
09.00 – 10.30 Symposium SS2 – Polio Survivors
Theme: Aging & Comorbidity
09.00 – 09.30 Aging and Muscle Function Including Sarcopenia – Jan Lexell (SE)
09.30 – 10.00 Osteoporosis – Helena Burger (SI)
10.00 – 10.30 Medication for Comorbidities; effects in Post-Polio Syndrome? – Lise Kay (DK)
09.00 – 10.30 Symposium SC2 – Clinical Practice
Theme: Best Practices for Post-Polio Syndrome: Making the Diagnosis
09.00 – 09.30 Diagnostic Criteria for Post-Polio Syndrome – Steve Sturman (UK)
09.30 – 10.00 Differential Diagnosis of Post-Polio Syndrome and the Role of Muscle Imaging – Marianne De Visser (NL)
10.00 – 10.30 The Role of EMG Investigations in PPS – Arzu On (TR)
09.00 – 10.30 Symposium SR2 – Research
Theme: Post-Polio Syndrome: Psychological Interventions
09.00 – 09.30 Resilience and Psychological Reactions in Polio Survivors – Anne-Kristine Schanke (NO)
09.30 – 10.00 Cognitive Behavioural Therapy – Sandra De Moree (NL)
10.00 – 10.30 Hope and Well-Being of Patients with Post-Polio Syndrome: Implications For Psychotherapy – Shimon Shiri (IL)
10.30 – 11.00 Coffee break
11.00 – 12.00 Workshop WS4 – Polio Survivors
Speech & Swallowing Therapy
Sandra Offeringa (NL) – Paivi Annikki Tupala (NO) with Assistance of Thomas Lehmann (CH)
11.00 – 12.00 Free Papers Session FP2 – All Delegates
Societal Issues In (Until Recent) Endemic Countries
11.00 – 11.15 Polio & Post-Polio Syndrome need attention regarding Palliative Care in Rural (Desert) Community of Pakistan – Jewat Sunder (PK)
11.15 – 11.30 Discrimination of Polio Survivors in India – Krithika Murali (IN)
11.30 – 11.45 Afterthought: Living with Polio in the Post-Elimination Era – Mitali Thakore (USA)
11.45 – 12.00 The Relationship between the Polio Endemic and extreme Poverty in the Northern part of Nigeria – Ponnle Lawson (UK)
11.00 – 12.00 Free Papers Session FS1 – Polio Survivors
Coping and Exchange of Experiences
11.00 – 11.15 Self Management of the Late Effects of Polio–Seeking Government and Private Funding Support: The Australian Experience-John Tierney (AU)
11.15 – 11.30 Painting the Same Picture can provide better Clinical Outcomes – Hilary Ann Boone (UK)
11.30 – 11.45 Illness experiences of people with Post-Polio Syndrome – Minne Bakker (NL)
11.45 – 12.00 Learning from the Past: Polio Survivors Experiences prior to the creation of the British National Health Service – Anita Atwal (UK)
12.00 – 13.30 Lunch / Posters Viewing
13.30 – 15.00 Symposium SS3 – Polio Survivors
Theme: Symptom Management – What to Do With Pain, Fatigue, Sleep Problems?
13.30 – 14.00 Managing Pain in Polio - Marguerite Preudhomme (FR)
14.00 – 14.30 What to do with fatigue problems? -Gunilla Ostlund (SE)
14.30 – 15.00 Sleep and neuro-muscular disease – Hans Hamburger (NL)
13.30 – 15.00 Symposium SC3 – Clinical Practice
Theme: Best Practices for Post-Polio Syndrome – Rehabilitation
13.30 – 14.00 Best Rehabilitation Practices for Post-Polio Syndrome -Fieke Koopman (NL)
14.00 – 14.30 Exercise Interventions -Gunnar Grimby (SE)
14.30 – 15.00 Interdisciplinary Teamwork and Rehabilitation Plans -Jan Lexell (SE)
13.30 – 15.00 Symposium SR3 – Research
Theme: Pathophysiology & Immunological Aspects
13.30 – 13.55 The Immunobiology of Post-Polio Syndrome – Marinos Dalakas (USA)
13.55 – 14.20 Treatment with Immunogloblines – Kristian Borg (SE)
14.20 – 14.40 Loss of Motor Unit Size and Quadriceps Strength over 10 Years in Post-Polio Syndrome – Alice Bickerstaffe (NL)
14.40 – 15.00 Brain Volume Studies in Post-Poliomyelitis Syndrome Patients – Daria Trojan (CA)
15.00 – 15.30 Coffee break
15.30 – 16.30 Workshop WS5 – Polio Survivors
Coping & Psychological Issues – Old Habits die hard
Gunilla Ostlund (SE), Sandra de Moree (NL)
15.30 – 16.30 Workshop WS6 – Polio Survivors
International Exchange of Experiences Between Polio Support Groups
John McFarlane (IE), Els Symons (NL)
15.30 – 16.30 Workshop WS7 – Polio Survivors
Nutrition for Post-Polio Syndrome
Frances Quinn (UK), Coby Wijnen (NL)
15.30 – 16.30 Guided Poster Tours PT1 – Professionals
16.30 – 17.30 Free Papers Session FP3 – Professionals
Intervention Studies
16.30 – 16.45 The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors;
a Randomised Controlled Trial – Deirdre Murray (IE)
16.45 – 17.00 Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome:
Preliminary Results of a randomized controlled Trial – Fieke Koopman (NL)
17.00 – 17.15 IVIG Treatment in Post-Polio Peter – Arlien-Soborg (DK)
17.15 – 17.30 Restless Leg Syndrome in Poliomyelitis -Enric Portell (SP)
16.30 – 17.30 Workshop WC2 – Clinical Practice
Multidisciplinary One-day Rehabilitation Team Evaluation for Post-Polio Syndrome Patients
Parwin Yari (NL), Anne Carien Beishuizen (NL), Dorien Toor (NL), Liesbeth Eggink (NL)
16.30 – 17.30 Workshop WR3 – Research
Theme: International Research Collaboration
Kristian Borg (SE)
19.00 – 22.00 Conference dinner
Friday June 27, 2014
08.00 – 09.00 Workshop WP4 – Professionals
Physio- and Occupational Therapy Inspiration across Borders
Merete Bertelsen (DK), Katja Appelin (SE)
08.00 – 09.00 Workshop WP5 – Professionals
Deformity correction in Post-Polio Residual Paralysis
Mathew Varghese (IN), Matthias Schafroth (NL)
08.00 – 09.00 Free Papers Session FP4 – Professionals
Gait Studies & Orthotic Devices
08.00 – 08.15 Relationship between Physical Activity, Knee Muscle Strength and Gait Performance in Persons with Late Effects of Polio – Cecilia Winberg (SE)
08.15 – 08.30 Standardization of Quantitative Data of Gait Characteristics of Post-Poliomyelitis Patients – Isabella Schwartz (IL)
08.30 – 08.45 Benefits of a Stance and Swing Control Long Leg Brace in Polio Survivors – Merel Brehm (NL)
08.45 – 09.00 Comparing the Effect of a Dorsal-Leaf-Spring AFO and a spring-hinged AFO
on gait characteristics in Plantarflexor weakness – a pilot study Hilde Ploeger (NL)
09.00 – 10.30 Symposium SS4 – Polio Survivors
Theme: Surgery for Secondary Problems and Anesthesia
09.00 – 09.30 Orthopedic Surgery inPost-Polio Syndrome – Matthias Schafroth (NL)
09.30 – 10.00 Orthopedic Surgery in Young Polio Surviors – Jagdish Patwa (IN)
10.00 – 10.30 Anaesthesiology: a Risk in Post-Polio Syndrome? – Lise Kay (DK)
09.00 – 10.30 Symposium SC4 – Clinical Practice
Theme: Falls and Orthotic Devices
09.00 – 09.30 Twenty Years of Orthotic Adventures in Polio: An Irish Perspective – Donna Fisher (IE)
09.30 – 10.00 Stance-Control Orthoses – Frans Nollet (NL)
10.00 – 10.30 Orthotics in Developing Countries – Raphael Amuzu Dzameshie (GH)
09.00 – 10.30 Symposium SC5 – Clinical Practice
Theme: What Can We Learn from Each Other’s Practices?
09.00 – 09.30 Post-Polio Patients in Norway; Past and Present Rehabilitation – Ingebjørg Irgens (NO)
09.30 – 10.00 What can we learn from each other practices? – Laura Bertolasi (IT)
10.00 – 10.30 Breaking the Silence: Coping With Polio in a Third World Country – Emmanuel Piki (ZW)
10.30 – 11.00 Coffee break
11.00 – 12.00 Workshop WS8 – Polio Survivors
Wheelchairs
Dorien Toor (NL), Kees Sytsma (NL)
11.00 – 12.00 Free Papers Session FP5 – Professionals
Orthopedic Surgery
11.00 – 11.10 Why, When, Where of Limb Lengthening – Jagdish Patwa (IN)
11.10 – 11.20 Leg length discrepancy corrected by Tibial lengthening – Neelkumar Patel (IN)
11.20 – 11.30 Post-Operative Management of Limb Lengthening – Jagdish Patwa (IN)
11.30 – 11.40 Translocation of Peroneus Longus Tendon for Calcaneus Deformity by Dr. Patwa’s Technique – Parth Patel (IN)
11.40 – 11.50 Hamstring to Quadriceps transfer for Quadriceps paralysis- Malkesh Shah (IN)
11.50 – 12.00 Discussion
11.00 – 12.00 Free Papers Session FS2 – All delegates
Post-Polio Survivors In Europe
11.00 – 11.15 The Norwegian everyday life, experienced by non-western immigrant women living with Polio Nina Levin (NO)
11.15 – 11.30 Strategies in daily occupations of Immigrants with Late Effects of Polio Iolanda Tavares Silva (SE)
11.30 – 11.45 Physical Activity in Persons with Late Effects of Polio -a descriptive Study Cecilia Winberg (SE)
11.45 – 12.00 New 20-Year Follow-Up National Survey on Polio Survivors in Norway Lillian Festvaag (NO)
12.00 – 13.30 Lunch / Posters
13.30 – 15.00 Plenary & Closing Session
13.30 – 13.50 How to Strengthen Collaboration with Developing Countries – John McFarlane (IE)
13.50 – 14.10 Future Outlooks for the Management of Polio Survivors – Jan Lexell (SE)
14.10 – 14.30 Award Session Best Free Paper Presentation
14.30 – 14.50 Summary of Main Conference Results – Kristian Borg (SE) and John McFarlane (IE)
14.50 – 15.00 Closing – Frans Nollet (NL)
15.00 – 15.30 Drinks
Translation will be provided in Dutch, German and French, marked in Green
List of confirmed speakers
| First name | Surname | Company / Institution | Country |
| Katja | Appelin | Skanes University Hospital | Sweden |
| Wilfried | Bakker | Institute for Translational Vaccinology | The Netherlands |
| Anita | Beelen | Academic Medical Center | The Netherlands |
| Anne Carien | Beishuizen | Academic Medical Center | The Netherlands |
| Merete | Bertelsen | Danish organization of Polio- and Accident Victims PTU | Denmark |
| Laura | Bertolasi | University of Verona | Italy |
| Alice | Bickerstaffe | Academic Medical Center | The Netherlands |
| Kristian | Borg | Karolinska Institute | Sweden |
| Merel | Brehm | Academic Medical Center | The Netherlands |
| Christina | Brogardh | Lund University | Sweden |
| Helena | Burger | University Rehabilitation Institute | Slovenia |
| Marinos | Dalakas | Thomas Jefferson University | USA |
| Sandra | de Moree | Academic Medical Center | The Netherlands |
| Marianne | de Visser | Academic Medical Center | The Netherlands |
| Ramneek | Dev | Denmark | |
| Raphael | Amuzu Dzameshie | Ghana | |
| Liesbeth | Eggink | Academic Medical Center | The Netherlands |
| Anne Marie | Eriksen | Danish organization of Polio- and Accident Victims PTU | Denmark |
| Michael | Gaytant | University Medical Center Utrecht | The Netherlands |
| Tom | Gort | Noppe Orthopedics | The Netherlands |
| Gunnar | Grimby | Sahlgresnska University Hospital | Sweden |
| Hans | Hamburger | Slotervaart Medical Centre | The Netherlands |
| Just | Herder | Delft University of Technology | The Netherlands |
| Anja | Horemans | Patient Union for Muscle Diseases (Spierziekten Nederland) | The Netherlands |
| Ingebjørg | Irgens | Sunnaas Rehabilitation Hospital | Norway |
| Hamid | Jafari | World Health Organisation | Switzerland |
| Lise | Kay | Danish organization of Polio- and Accident Victims PTU | Denmark |
| Fieke | Koopman | Academic Medical Center | The Netherlands |
| Isabelle | Laffont | University of Montpellier | France |
| Thomas | Lehmann | Schweizerische Interessengemeinschaft für Post-Polio Syndrom (SIPS) | Switzerland |
| Jan | Lexell | Skåne Regional Council | Sweden |
| Jan Lucas | Ket | Gouvernor District 1580 Rotary International | The Netherlands |
| John | McFarlane | European Polio Union | Ireland |
| Mary | McFarlane | European Polio Union | Ireland |
| Deidre | Murray | Beaumont Hospital | Ireland |
| Frans | Nollet | Academic Medical Center | The Netherlands |
| Sandra | Offeringa | Academic Medical Center | The Netherlands |
| Arzu | On | University of Ege | Turkey |
| Jozef | Opara | Academy of Physical Education Katowice | Poland |
| Gunilla | Östlund | University of Stockholm | Sweden |
| Jagdish | Patwa | India | |
| Hilde | Ploeger | Academic Medical Center | The Netherlands |
| Enric | Portell | Hospital Clínic of Barcelona | Spain |
| Frances | Quinn | British Polio Fellowship | United Kingdom |
| Axel | Ruetz | Katholisches Klinikum Koblenz·Montabaur | Germany |
| Matthias | Schafroth | Academic Medical Center | The Netherlands |
| Anne-Kristina | Schanke | Sunnaas Rehabilitation Hospital | Norway |
| Shimon | Shiri | Hadassah Medical Center | Israel |
| Els | Symons | European Polio Union | The Netherlands |
| Kees | Sytsma | Sunrise Medical | The Netherlands |
| Katharina | Stibrant Sunnerhagen | University of Gothenburg | Sweden |
| Steve | Sturman | Queen Elisabeth Hospital | United Kingdom |
| Jaroslaw | Szczygiel | Academy of Physical Education Katowice | Poland |
| Vincent | Tiffreau | University of Lille | France |
| Antonio | Toniolo | Laboratory of Medical Microbiology | Italy |
| Dorien | Toor | Academic Medical Center | The Netherlands |
| Daria | Trojan | MC Gill University | Canada |
| Paivi Annikki | Tupala | Sunnaas Rehabilitation Hospital | Norway |
| Heike | Vallery | Delft University of Technology | The Netherlands |
| Mathew | Varghese | St Stephen’s Hospital | India |
| Harrie | van der Avoort | National Institute for Public Health and the Environment (RIVM) | The Netherlands |
| Dick | van Dijk | Patient Union for Muscle Diseases (Spierziekten Nederland) | The Netherlands |
| Frans | van der Helm | Delft University of Technology | The Netherlands |
| Eric | Voorn | Academic Medical Center | The Netherlands |
| Coby | Wijnen | Patient Union for Muscle Diseases (Spierziekten Nederland) | The Netherlands |
| Gareth | Williams | University of Bristol | United Kingdom |
| Parwin | Yari | Academic Medical Center | The Netherlands |